Rare diseases are often life-threatening or chronically debilitating diseases which, when grouped together, are more common than initially thought. The situation is critical, and the answers lie in medical research. At IQVIA, we are committed to making medical research more effective and we recognize that working in collaboration, with networks like the European reference networks and G2M are crucial to success.

We invite you to register now and join this live webinar.

In this webinar we will share insights into how to work more collegially with academics, industry and patient groups to ultimately improve the care and treatment of patients with rare diseases.

This webinar will be hosted by Pharmaphorum and IQVIA.

Join the experts:

• Dr Jeff Keefer, VP & head of the Pediatric and Rare Disease Centres of Excellence, IQVIA
• Dr Jean-Meidi Alili, Senior pharmacist, Necker university hospital, AP-HP Paris, French healthcare network for rare metabolic diseases (G2M) and member of Metabolic Hereditary Diseases European reference Network (MetabERN)
• Dr Joanne Hackett, head of Genomic and Precision medicine, IQVIA

Gain new insights into:

• Improving the care and treatment of patients with rare diseases
• Developments in genomics medicine to improve diagnosis of rare diseases

Following the presentation, our team of experts will host a Q&A session. We highly encourage your participation.

We look forward to sharing our insights with you.