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Accelerating Rare Disease Research: The IQVIA Advantage
Transforming healthcare innovation by harnessing global real-world data for faster diagnoses, enhanced research, and impactful treatments in rare diseases.
IQVIA Belux
May 06, 2025
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  • Accelerating Rare Disease Research: The IQVIA Advantage

Discover the Future of Rare Disease Research

Imagine a world where researchers can swiftly identify crucial health data sets, turning a multi-month hunt into a matter of minutes. At IQVIA, we’re making that a reality. Our unrivaled real-world data expertise is fast-tracking projects and transforming countless therapeutic areas, with a special focus on rare diseases.

Time Is of the Essence

For individuals living with rare diseases, every moment counts. A diagnosis can stretch over years, involving numerous specialists, endless tests, and heartbreaking dead ends. Many rare diseases still suffer from a lack of data-driven insights, delaying research objectives and early diagnoses. IQVIA believes that every patient deserves timely, life-changing answers—and that’s why we refuse to accept the status quo.

Harnessing global data to find answers faster.

Our response lies in leveraging the world’s largest agnostic real-world data catalog. IQVIA’s Health Data currently Catalog profiles over 4,000 data assets spanning more than 100 countries. This comprehensive resource enables scientists and healthcare professionals to pinpoint disease-specific datasets quickly, uncover patterns across different healthcare systems, and identify trends that could lead to faster, more accurate diagnoses. When researchers spend less time searching for data, they spend more time making discoveries that can improve treatment approaches for rare diseases.

A Real-World Success Story

Consider the case of a major pharmaceutical company that approached IQVIA with a challenging research project focused on a rare and complex therapeutic disease. By harnessing the capabilities of our Health Data Catalog, they were able to:

  • Identify Over 70 Relevant Data Sources: Access key datasets spanning 30 countries in mere minutes rather than months.
  • Maintain Cutting-Edge Accuracy: Benefit from continuously updated metadata to ensure that their research relied on the most current and reliable information available.
  • Accelerate Project Timelines: Dramatically reduce the design and development phases of their project, paving the way for faster treatment options.
  • This collaborative effort highlights how our data solutions are not just about numbers—they’re about providing hope and speeding up the journey to effective treatments.

Changing the Landscape of Rare Disease Research

At IQVIA, we’re dedicated to bridging data gaps that have long hindered early-stage rare disease research. By offering rapid access to diverse data assets, we empower research teams to make informed decisions that ultimately lead to better patient outcomes. Our work is a testament to the impact that well-curated, global data can have on healthcare innovation.

Join our Lunch & Learn event about Rare Diseases on the 16th of May as we continue to push the boundaries and turn the tide on rare diseases. Every discovery made today is a step toward a brighter tomorrow for those in need.

Register here to participate in our Lunch & Learn event about Rare Diseases.

If you have any questions about rare diseases, feel free to contact jennifer.harrison@iqvia.com.

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