IQVIA’s Patient Centered Solutions (PCS) team recently demonstrated its dedication to advancing patient-centered research and methodological excellence through a strong presence at two major global conferences: ISOQOL (October 22–25, Milwaukee) and ISPOR EU (November 9–12, Glasgow).

From Milwaukee to Glasgow, our PCS team was on the ground—listening, debating, and sharing what’s next in patient-centered science. With ISOQOL’s focus on AI and the future of QOL research, and ISPOR EU’s energy around COA implementation, our posters captured real questions sponsors and researchers are asking right now.

Our team presented innovative posters that covered a range of patient experience data (PED) topics, including psychometrics, digital endpoints, caregiver experiences in rare diseases, and patient-centric approaches to clinical outcome assessments. Their work highlights IQVIA’s leadership in advancing patient-centered science, improving data validity, and shaping future research practices related to PED.

We invite you to explore the following posters that were delivered at these meetings along with a brief audio overview by the presenter or each poster. Please follow each link below to download the full poster and to hear the audio summary.

Highlights from ISOQOL (October 22-25, Milwaukee)

At ISOQOL the IQVIA PCS team presented posters highlighting advances in psychometrics, digital endpoints, qualitative data assessment, questionnaire validation, migration challenges in electronic QOL instruments, and caregiver experiences in rare disease. Following are the posters presented:

• A Comprehensive Literature Review of Definitions and Methods for Assessing Saturation of Qualitative Data
• Evaluating Agreement Metrics Used in Analytical Validation: A Simulation Study for a Digital Measure of Step Count
• Intraclass Correlation Coefficients in Multilevel Structural Validation of Intensively Collected Questionnaires: A Targeted Literature Review.
• Migration Inconsistencies in Electronic Quality of Life (QOL) Instruments in Clinical Trials
• Using a Multiple-Case Study Design to Explore the Experiences of Caregivers of Children with Rare Disease: Lessons Learned from a Study in Leukocyte Adhesion Deficiency, Type I (LAD-I)
• Subgroup or Principal Stratum Analysis? A Comparison and guidance for Use of the Principal Stratum Framework for COA Endpoints
• Scientific Best Practices in Electronic Clinical Outcome Assessments: A Literature Review from Past to Present

Highlights from ISPOR EU (November 9-12, Glasgow)

PCS continued its thought leadership at the ISPOR EU conference with posters spanning patient-centric research and clinical outcomes assessment (COA) development and implementation:

• A Collection of Essays on “Patient Centricity” in Intervention Development
• Evaluating Migration Errors in COA Development and Validation of the IQVIA Migration Error Severity Scale (I-MESS)
• Looking Back to Go Forward: Reintegrating Scientific Considerations into eCOA Design and Implementation

Experts in Measuring What Matters Most to Patients

These contributions underscore IQVIA’s role in shaping the future of patient-centered science. The IQVIA PCS team helps sponsors and researchers make more informed decisions that ultimately improve patient outcomes.

Curious how these findings apply to your program? Contact IQVIA’s PCS team to learn how we can help you with your patient experience data (PED) strategy and implementation.

Contact: PCSbd@iqvia.com